Pediatric Cystic Fibrosis Clinic

This service diagnoses, assesses, and treats children with cystic fibrosis (CF). This service is also the main contact for Provincial Cystic Fibrosis Newborn Screening results.

The nurse is the main contact for the clinic and the nurse:

• coordinates and plans the care
• is available for telephone consultation, Monday through Friday

The clinic is held weekly.

• children and their families visit the clinic 3 to 4 times a year
• visits takes between 1 and 3 hours
• activities include measurements of height, weight, breathing tests, lab work, x-rays, and assessments with each team member. Consultation with other specialities can also be arranged as needed

Newborn infants recalled through the newborn screening program are scheduled for a follow-up test (sweat chloride) and parents are provided education and offered genetic counselling.