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The data within AHS can be made available for research purposes under certain terms and conditions, and can be accessed either by data extraction (done by an AHS data analyst) or by direct access to an AHS IT system.
Prior to the data access, the research study must be approved by a Research Ethics Board (REB) designated under Alberta’s Health Information Act (HIA). Whether data is obtained by extraction or by direct access, the researcher is required to enter into an agreement with AHS for the data disclosure. This agreement could be in the form of a Clinical Trial Agreement (CTA), Sub-Site Agreement, HIA Research Agreement (HIA RA) or a Data Disclosure Agreement (DDA). Please contact a member of the Health System Access (HSA) team to determine the appropriate agreement to suit your needs.
To ensure the privacy protection of AHS health information, the sharing or transfer of AHS data to any external entity must be reviewed and approved by HSA. Data sharing without explicit consent must comply with AHS’ Non-Identifying Health Information Standard.
Data sources from which the extraction was obtained must be documented by HSA. If you have an REB-approved study requiring extraction services, contact firstname.lastname@example.org.
If the research study requires data extraction services and the research team is unsure of how to source the data, contact email@example.com.
Direct IT Access for research purposes will only be considered for those who are listed as study staff or research personnel on an REB-approved study. All systems accessed must be authorized and documented on a study-by-study, person-by-person basis. To request authorization to obtain data by direct access, contact firstname.lastname@example.org.
Netcare is a commonly requested direct access system for research. Netcare information may be used in research only when the study meets all of the requirements set forth in the Alberta Netcare Information Exchange Protocol and authorization for research use has been obtained from HSA.
Below is contact information for researchers interested in using REDCap as their electronic data capture tool for clinical research.
If you would like more comprehensive support, you can also apply through the Alberta SPOR SUPPORT Unit (AbSPORU) portal. Applications to AbSPORU are reviewed for support and if they meet the criteria, they can get partially funded support from the appropriate AbSPORU Platform(s).