Planning for the Future

Well on Your Way

What Will Happen When I am Gone?

Many parents worry about how their child with a disability will manage when they cannot care for them anymore. Making a plan can help. Some questions to ask:

  • What are my child’s hopes, dreams, and goals?
  • Who will offer friendship and keep them involved in the community?
  • Where would I like my child to live?
  • Who is able to help my child with important decisions?
  • What costs will there be, and how can I make sure they are covered?
  • Who will protect my child and speak up for them?

This might sound overwhelming. Here are some things to keep in mind:

  • You are not alone. Reach out to other families in your situation for advice and support.
  • Start slowly. You do not need to do everything at once.
  • Do not expect your plan to be perfect. Any plan is better than none at all.
  • Talk about plans with your child, other family members, and friends.
  • Get help from a professional (e.g., financial planning, wills, and estates).
  • Take care of yourself. Our page on parent wellbeing can help.

Financial Planning, Wills and Estates

Whether you have a little money or a lot, you can help protect your child’s financial future. Here are some things you can do:

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